People have been so kind this last week. Overwhelmingly compassionate. Thank you.
Right now we are coping pretty well, trying to keep life normal. We've been busy with a sick toddler (just a cold), insurance pre-authorizations, medical provider switches, buying a 2nd car (hate car shopping), filing taxes (we owe, bummer), and other such normal tasks...
Many of you have asked if there was anything you could do. Honestly, there isn't much for anyone to do besides wait and pray. Although, if you're game for something a bit out of the box, there is a small thing you could try...
I have thought a lot about how this baby will always need a heart transplant. Kind of ironic, considering my own path to becoming an organ donor: I used to be completely against it. Not that the arguments for or against it mattered much to me, really the whole thing just creeped me out. And now I am having a baby that may someday depend on an organ transplant.
Heart donors are rare. Child heart donors are even more rare, simply because, thankfully and wonderfully, most healthy children don't die.
But I think the questions are still important to ponder: Have you considered becoming an organ donor yourself? Have you considered organ donation for your children?
I hadn't thought of it at all for my own toddler, but I have this last week. I can't fathom how I'd live without her should anything that tragic happen. And yet, I have another child who may one day depend on another parent's consent in an awful situation.
There's no right or wrong answers to these extremely personal questions, but perhaps it's something you can think on and discuss with your spouse in the next few weeks. While your decisions probably won't have any effect on our situation, it's at least something you could do for us while we all wait.